Shared-care Guidelines
Click here for a downloadable word document of the shared care agreement forms:
DMARDs Shared Care Agreement (Version 1.1)
Generic Shared Care Agreement Form
Date Posted: 14 - December - 2022
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To extend life or the time to mechanical ventilation for adult patients with amyotrophic lateral sclerosis (ALS) 1,2, variant of Motor Neurone Disease (MND). Safety and efficacy of riluzole has only been studied in ALS. Therefore, riluzole should not be used in patients with any other forms of MND. Riluzole should only be initiated by a neurological specialist with expertise in the management of MND (as per NICE TA 20, 2001)
It is expected that most patients will be managed by secondary care however this guideline is those patients who need to be managed in community